Patient-Centered Participatory Research in Three Health Clinics

Facilitating access to health research through a participatory research register: a feasibility study in outpatient clinics

BACKGROUND A research register (Reach West) has been established to facilitate recruitment of people and patients to health-related research. We conducted a prospective feasibility study to investigate the practicality of recruiting through outpatient clinics. METHODS Patients over 18 years of age attending dental, eye or oncology outpatient clinics in an acute hospital in the West of England...

Patient-Centered Care in Breast Cancer Genetic Clinics

With advances in breast cancer (BC) gene panel testing, risk counseling has become increasingly complex, potentially leading to unmet psychosocial needs. We assessed psychosocial needs and correlates in women initiating testing for high genetic BC risk in clinics in France and Germany, and compared these results with data from a literature review. Among the 442 counselees consecutively approach...

Patient - Centered Health Care

As the United States debates how to reorganize its health care system, policy makers must ask what patients really want and need from their primary care providers. There is often a disconnect between what patients say they want and what other providers or payers think patients want. Our research at the National Partnership for Women and Families suggests that a truly patient-centered health car...

The Patient-centered Outcomes Research Institute’s Role in Advancing Methods for Patient-centered Outcomes Research

Currently, there is wide-spread recognition that much of health care is insufficiently grounded in evidence as to what works for whom under what circumstances. An important reason for this is that research efforts often do not compare alternative options of health care nor are they sufficiently focused on outcomes that matter to patients. In addition, the methods to conduct research designed to...

A Patient-centered Health System